Dear friends,
I need you !
This year, I chose to take on the challenge of the MARATHON DU MONT-BLANC, one of the most beautiful Trail events at the foot of Mont-Blanc ... A real challenge that I chose to accomplish as a runner in solidarity with "Team Lysosome". If I have a few months left to train, I need you today to win my bib.
To meet this challenge and be able to take the start, I will indeed run with the association "Vaincre les Maladies Lysosomales", which fights against more than 50 rare genetic diseases. I joined their program "Solidarity bibs" which allows 40 runners to take the start in exchange for support for their missions. The opportunity to combine my passion with a positive and human challenge.
So ... please don’t wait .... Now click to donate ! ..... "paypal link"
Your donation and your generosity will allow them to finance actions for patients or to support a research program, and it is up to me to take the start of this fabulous race. I will be proud to be one of them this year. For that I must have collected a minimum of 550 € before March 1st to definitively validate my participation, but I hope a maximum by the departure in June.
You can contact me if you want more information. I will be happy to answer all of your questions.
What action am I committed to ?
Lysosomal diseases are a collection of 53 rare genetic diseases. Polyhandicapants and degenerative, they are serious and for many the vital prognosis is engaged in the short or medium term. Several treatments for the symptoms are starting to appear and are helping to alleviate the disease, but not yet cure it. Therapeutic avenues are being developed to perhaps overcome these diseases.
A French association working alongside families for 30 years, our mission is to inform, support and help patients and their families get through this ordeal. We ensure a constant link with the medical and scientific community to improve the care of patients. We also participate in international research by providing funds each year to research teams. We work in collaboration with European and international associations to discuss and advance our common fight.
Information : Your donation will be directly and 100% paid to the association. The French association VML is recognized as a public utility and authorized to receive donations. It received the approval donated in confidence, a guarantee of transparent and controlled management.
I am therefore counting on you to accompany me ... by supporting them ....
Thank you for your support
Nicolas